World Parkinson’s Day: Standing Up for People with Parkinson’s in Newcastle-under-Lyme
- Adam Jogee MP
- Apr 11
- 2 min read
Today is World Parkinson’s Day – a chance to raise awareness of Parkinson’s, the fastest-growing neurological condition in the world, and to stand in solidarity with the 153,000 people across the UK who are living with it every day.
Earlier this month, I joined Parkinson’s UK at a special event in Parliament. I had the privilege of hearing directly from people affected by Parkinson’s about the daily challenges they face – whether that’s waiting too long for specialist care, navigating a shortage of trained professionals, or managing the financial strain of a long-term condition.
Parkinson’s affects everyone differently. There are more than 40 symptoms, ranging from tremors and stiffness to anxiety, hallucinations and severe fatigue. It can be unpredictable, complex, and exhausting. But amid all of that, there is help – and there is hope.
Parkinson’s UK does vital work to support people every step of the way. From their confidential helpline and local advisers, to practical help with employment, benefits and health services, and pioneering research into new treatments, their impact cannot be overstated.
In Parliament, I’ve been raising the issues that matter to people with Parkinson’s in Newcastle-under-Lyme. On 11 February, I asked Ministers what steps were being taken to improve access to care locally – and I brought forward the case of my constituent Julie, from Bradwell, who has been a tireless and passionate campaigner for better support for people with Parkinson’s. Julie’s advocacy has helped shine a light on the everyday realities of living with this condition, and I was proud to share her story in the House of Commons.
I also raised a specific concern that many constituents have told me about: the fact that Parkinson’s is not included on the NHS medical exemption list for prescription charges. This means people with a progressive, incurable neurological condition are still expected to pay for essential medication.
Following my question in Parliament, I met with Health Minister Karin Smyth MP to discuss Julie’s case in more detail and to continue pushing for progress. I will keep working to make sure people with Parkinson’s receive the care, respect and support they deserve.
Closer to home, I’ve had the chance to spend time with members of our local Parkinson’s community. In August 2024, just a month after I was elected, I visited the Parkinson’s Café at Red Street Community Centre. Parkinson’s is a deeply personal issue for my own family, and it was incredibly moving to meet volunteers and residents supporting one another with such kindness and dignity.
We need to get diagnosis, treatment, and support for carers and families right. That means listening to those with lived experience, investing in the services that matter, and making sure no one faces this journey alone.
If you or someone you love is living with Parkinson’s, please know that you’re not alone:
Visit www.parkinsons.org.uk for information and local services
Call the Parkinson’s UK Helpline on 0808 800 0303
Or contact me if you need help accessing support – my office is here for you